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If you have questions about your HAE medicine and how it works, you are in the right place. Find answers to some common questions below.

What does your HAE medicine do in your body?

HAE attacks are caused by having low levels of working C1-INH in the blood.1 C1-INH is an important protein in your body that controls swelling.1,2 Your HAE medicine acts quickly to treat the cause of HAE by adding working C1-INH directly into your bloodstream, which halts the progress of an HAE attack.2,3

When should you take your medicine?

Your treatment is what is called an “on-demand” therapy – which means you take it as and when you need it. It can also be self-administered, meaning you take it yourself wherever you are.

The decision for you to self-administer your treatment should be made with the doctor that treats you for HAE. They will also make sure you receive appropriate training and will keep checking back with you regularly to make sure self-administration is still right for you.

Being able to self-administer means you take your treatment when you need it at the first signs of an HAE attack. It’s important to treat quickly to provide symptom relief, especially if you experience a laryngeal attack, as this can be life threatening.4

where. can you hear stories from others about self-administering for HAE?

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Click through for more answers about dosing and storing your medicine, as well as possible side effects

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REFERENCES

  1. Gompels MM, et al. Clin Exp Immunol 2005; 139: 379–394
  2. Berinert (1500 IU powder and solvent for solution for injection) Summary of Product Characteristics
  3. Berinert (500 IU powder and solvent for solution for injection) Summary of Product Characteristics
  4. Bork K, et al. Arch Intern Med 2003;163(10):1229-1235.