there. are many ways to build a routine

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To successfully manage living with HAE, you may likely need to make a few changes to your life – building a routine can help.

However, no two people are the same. HAE impacts everyone differently depending on how severe and where their symptoms are, as well as how often they have an attack.1,2 So finding a routine for managing your HAE that works for you is personal.

I try to have a holistic approach, so it’s about what you do physically, spiritually, emotionally and mentally. It’s about keeping your body in balance

Scott, Hawick, Scotland

When deciding on what routine helps you best manage your HAE, it may help to first get to know your own personal triggers of an HAE attack. This can help you to make changes to your life that can reduce your risk of an attack.

For example, if stress can trigger an attack, you might take steps to manage the amount of stress in your life. The more you learn about HAE, the more in control you will feel.

While HAE attacks can happen suddenly and without any apparent cause or warning, there are some triggers that make an attack more likely. 1,2

Find out more about recognising your own possible triggers and signs you are about to have an HAE attack by clicking here

there. are many other ways to create a routine that works for you. You could try:

Keeping an HAE diary

It is a good idea to keep a record of your HAE attacks (such as symptoms, potential triggers and treatment). Keeping a diary can help you and your doctor monitor and manage your condition as effectively as possible. You can create your own Berinert diary to record this information.

Talking to others about HAE

Creating a routine that helps you successfully manage your condition might also mean making changes at your place of work or study. But it is not always easy to know what to say. If you need to talk to others about your HAE and how it affects you, our resources might help.

You can find more ideas for managing life with HAE at All About HAE, a website that provides information on understanding, managing and living with the condition.

REFERENCES

  1. Lumry W et al. J Infus Nurs 2020; 43(3): 134–145
  2. Bygum A et al. Front Med 2017; 4: 212